OUR STORY
Joey’s Song fights epilepsy with music in memory of Joseph Gomoll, who died in 2010 just shy of his fifth birthday after suffering a debilitating form of epilepsy called Dravet Syndrome.
Our multi-day music event called #FreezingMan supports families by raising funds to support the critical research needed to find treatments and cures.
DID YOU KNOW
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Epilepsy claims more lives than breast cancer every year.
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It affects more people than multiple sclerosis, cerebral palsy, muscular dystrophy, and Parkinson’s disease combined.
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The World Health Organization says epilepsy is the most common serious brain disorder worldwide.
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Epilepsy research receives less than half of a percent out of the National Institutes of Health (NIH) $30 billion annual medical research budget, despite NIH being the main source of U.S. dollars for epilepsy research.
HOW JOEY'S SONG RAISES FUNDS
Our non-profit foundation uses music events as our primary fundraising vehicle because of Joey's love of music. Each year, we host a benefit concert that features multi-platinum recording artist and three-time Grammy winner Butch Vig and his band, The Know-It-All Boyfriends (aka KIAB), who serve as a house band to a steady stream of musical stars.
Our profound gratitude to the performers who have supported us through the years.
FRANK ANDERSON • SOUL ASYLUM • JON AUER (THE POSIES / BIG STAR) • CHARLIE BERENS • PETER BUCK (R.E.M., THE BASEBALL PROJECT) • PARIS CAMPBELL • NEKO CASE • ROSANNE CASH • CORY CHISEL • CHRIS COLLINGWOOD (FOUNTAINS OF WAYNE) • JOHN COWSILL (THE COWSILLS, THE BEACH BOYS) • RALPH COVERT (THE BAD EXAMPLES, RALPH’S WORLD) • JAMES “PIE” COWAN • MARSHALL CRENSHAW • DEL AMITRI • TANYA DONELLY (BELLY, THROWING MUSES, THE BREEDERS) • ALEX DROSSART • CRASH TEST DUMMIES • DUKE ERIKSON (GARBAGE) • ELLA FEINGOLD • ROBBIE FULKS • MONTGOMERY GENTRY • LAURA JANE GRACE (AGAINST ME!) • GAIL GREENWOOD (BELLY, L7, BENNY SIZZLER) • KAY HANLEY (LETTERS TO CLEO) • JOEL HODGSON (MYSTERY SCIENCE THEATER 3000) • KELLY HOGAN (MAVIS STAPLES, THE DECEMBERISTS) • PATERSON HOOD (DRIVE-BY TRUCKERS) • KENNY HOOPLA • WALLY INGRAM (SHERYL CROW, EL RAYO-X) • JEWEL • FREEDY JOHNSTON • COWBOY JUNKIES • GREG KOCH (KOCH MARSHALL TRIO, THE NIELSEN TRUST) • SAM LLANAS (THE BODEANS) • GARY LOURIS (THE JAYHAWKS) • JESSE MALIN (D GENERATION) • PORTUGAL.THE MAN • SCOTT MCCAUGHEY (R.E.M., THE MINUS 5, THE BASEBALL PROJECT) • MICHAEL MCDERMOTT • RHETT MILLER (OLD 97S) • MIKE MILLS (R.E.M., THE BASEBALL PROJECT) • DAN NAVARRO (LOWEN & NAVARRO) • DAXX NIELSEN (CHEAP TRICK) • MILES NIELSEN (THE RUSTED HEARTS, THE NIELSEN TRUST) • JAY MORAN • RICK NIELSEN (CHEAP TRICK) • MARK OLSON (THE JAYHAWKS) • DEBBI PETERSON (THE BANGLES) • VICKI PETERSON (THE BANGLES) • SILVERSUN PICKUPS • LINDA PITMON (ZUZUS PETALS, THE BASEBALL PROJECT) • BRIAN RAY (PAUL MCCARTNEY, ETTA JAMES) • JOHN RZEZNIK (THE GOO GOO DOLLS) (NEW 2025 GUEST) • DAVE SCHELZEL (OCEAN BLUE) • JODY STEPHENS (BIG STAR) • KELLY STEWRD (THE NIELSEN TRUST) • KEN STRINGFELLOW (THE POSIES / BIG STAR) • SIERRA SWAN • MATHEW SWEET • BUTCH VIG (GARBAGE) • GINA VOLPE (LUNACHICKS) • JANE WIEDLIN (GO-GOS) (NEW 2025 GUEST) • ZACH WILLIAMS (THE LONE BELOW) • STEVE WYNN (DREAM SYNDICATE, THE BASEBALL PROJECT)
WHO WE SUPPORT
The majority of our epilepsy and seizure-related grant funding goes to the Joseph Gomoll Research Grant, which is being used at Northwestern University in exciting ways. Dr. Carvill's Lab at Northwestern uses gene discovery and molecular biology to identify new epilepsy treatments. Its aim is to identify the causes of epilepsy in order to develop a personalized approach to care and treatment.
CURE Epilepsy is the leading nongovernmental agency committed to funding patient-centered epilepsy research. It administers the Joseph Gomoll Research grant on our behalf. We also bestow other pediatric-related grants throughout the year.
HOW TO GET INVOLVED
Our organization continues to grow exponentially each year because of the incredible, selfless sponsors, donors, musicians, participants, artists, collaborators, and, of course, you.
Please consider donating to Joey's Song or sponsoring the event. Together, we can help educate the world about epilepsy and raise money to find a cure.